
A group wrote a letter to a newspaper. The group is the British Deaf Association. They talked about gene editing. Gene editing can change genes in the body. Some people want to use gene editing for deafness. Deafness is not a deadly condition. Most people do not want this.
A group in the US approved a new therapy for deafness. The approval happened very fast. Deaf people were not part of the talk. Medical talks are not in sign language. The letter says this is a problem. Deaf people must help make these choices.
The phrase "nothing about us without us" is important. It means deaf people must join the talk. The letter asks UK leaders to work with deaf people. Deaf people have the right to be part of the decision.